Born April 15, 2002, Emma-Rose Grenon-Lemaitre is a special little girl who touches your heart no matter who you are or what you believe in. In her toddler years, her parents, Jim and Carole, noticed a different course to her growth and development than their older daughter Adele. After many intuitive visits to various medical professionals, Emma-Rose was diagnosed, at 21 months of age, with a terminal disease identified as Hurler Syndrome (MPS I).

This was not an expected life path for the Grenon-Lemaitre family, as this disease would force them into a new world, that of the unknown, that of no cure.

As devastating as this disease is, and with its poor outcome, Jim, Carole, Adele and Emma-Rose are an inspiration to all of us. Their journey is of appreciation of life, of thankfulness to all who touch their hearts, and of gratitude to those who continue to support them through thick and thin.

Today, Emma-Rose lives with her family in Sherbrooke, Quebec. The overwhelming pressure on the family pushed them to sell their house in Markham, Ontario and move to Quebec in the summer of 2009. There, they have been closer to their extended family, especially during the hardship that is awaiting them in the years to come.


MPS Society Sick Kids Foundation

Honour Roll

Gold Sponsor – Attwell Plastics

Gold Sponsor – BIGMUCH

Gold Sponsor – BioMarin

Gold Sponsor – European Elegance

Gold Sponsor – Pfaff Porsche

Gold Sponsor – Posh Special Event Stylings

Gold Sponsor – Sanofi Genzyme

Gold Sponsor – Shire

Gold Sponsor – Tic Toc Tours

Silver Sponsor – Haft2

Silver Sponsor – Lafarge

Bronze Sponsor – Bell, Temple Barristers & Solicitors

Bronze Sponsor – Medagh Industrial Recycling

Bronze Sponsor – Prochilo Brothers

Bronze Sponsor – Rocco Picheca Salon

Bronze Sponsor – TriBro Studios

Service Donor – Alpha Entertainment

Service Donor – Elemental View

Service Donor – Geek Oracle